Watch Regina’s story, a 75 year old lady from North West of Tasmania.
Watch Dean Clifford, an EB (Epidermolysis Bullosa) survivor from Queensland as he shares his journey with this rare disease for the last 40 years.
Watch David’s story from South Australia as he shares his experience of having diabetic ulcers.
Story of Lachlan, a 4 months old baby from Queensland
Lachlan was born in April, 2020 with RDEB (Recessive Dystrophic Epidermolysis Bullosa) a very severe skin condition which makes his skin as fragile as butterﬂy wings. Because of this, children with EB have been coined “Butterﬂy Children”.
Lachlan’s care can be quite distressing for us as he usually is in quite a bit of pain when it comes to his dressing changes. It requires popping blisters and dressing wounds all over his body, throughout daily life. It can be quite a long process and involves both my partner and myself to do the dressings and daily care.
This of course will all impact Lachlan’s life tremendously. He won’t get to have a normal child’s upbringing as his skin becomes wounded just from the slightest movement. This is the reality of life with EB.